The ALS Affair

A Long Swim has a Lot to Celebrate!

Amyotrophic Lateral Sclerosis​ (ALS)

Join us for a dinner of fun and exciting information.

A Long Swim is changing the face of ALS research, all while swimming new seas. Some of the early projects we have funded are showing tremendous promise, and one is in early stages of FDA approval.

The Dinner
Kitchen American Bistro interiorThe ALS Affair will be a dinner, to be held at The Kitchen American Bistro, 316 North Clark Street, Chicago, IL 60654. We will be together 6:00 – 9:00 p.m. on Friday, October 20, 2023, with news of our team’s accomplishments and excitement about our opportunities, all with raffles, auctions and good friends.

The rock stars of this gathering will be the ALS researchers from Northwestern, who are tirelessly attacking the mechanism of ALS and all neurodegenerative diseases, utilizing newly-discovered biomarkers to measure the changes in the diseases.

There is So Much to Look Forward to!

ALS Research – Progress with FDA as it relates to AKV-9, a compound that slows (and in some cases, reverses!) deterioration in upper motor neurons. That is applicable not only to ALS, but to other neurodegenerative diseases like Parkinson’s and Alzheimer’s.

In addition, the research has led to identification of biomarkers that are both linked to ALS and will be the foundation and yardstick against which progress of the drug as it attacks this dreadful disease.

Swimming – Update on the Chicago River Swim, the first organized event of its kind in a century. News of a swim from Nantucket to Martha’s Vineyard, a first-ever swim past jellyfish and great white sharks.